NOTICE: Many events listed here have been canceled or postponed due to the Covid-19 emergency. It is best to call ahead or check with organizer's websites to verify the status of any local event.

Change Location × Washington DC

    Recent Locations

      Equitable Access to Rare Disease Therapies Workshop in Washington


      • Equitable Access to Rare Disease Therapies Workshop Photo #1
      1 of 1
      May 20, 2020

      Wednesday   8:00 AM

      2550 M Street Northwest
      Washington, District of Columbia 20037

      Map
      Performers:
      • No Performers Listed
      EVENT DETAILS
      Equitable Access to Rare Disease Therapies Workshop

      With just 5% of the over 7,000 rare diseases addressed by some form of drug treatment, 95% of rare diseases remain without a therapeutic option. Rare diseases affect 1 in 10 Americans, yet many of these debilitating conditions impact a very small number of patients. The biopharmaceutical industry is delivering tremendous innovation, from disease-modifying medications to curative gene therapies, to address previously unmet medical needs. It is imperative that these innovations be accessible to those who deserve them.  This workshop brings together patients, families, patient advocacy groups, biopharmaceutical firms, providers, policymakers, and other NGOs to discuss how to achieve equitable access to care for rare diseases. Topics will include current barriers to care, ensuring earlier access, and drug pricing. Our goal is to empower patients and families who are affected by rare diseases.

      Categories: Health & Wellness | Outdoors & Recreation | Science

      Event details may change at any time, always check with the event organizer when planning to attend this event or purchase tickets.

      Hotels and Airbnbs near Equitable Access to Rare Disease Therapies Workshop. Book your stay now!