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      Equitable Access to Rare Disease Therapies Workshop in Washington

      • Equitable Access to Rare Disease Therapies Workshop Photo #1
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      May 20, 2020

      Wednesday   8:00 AM

      2550 M Street Northwest
      Washington, District of Columbia 20037

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      Equitable Access to Rare Disease Therapies Workshop

      With just 5% of the over 7,000 rare diseases addressed by some form of drug treatment, 95% of rare diseases remain without a therapeutic option. Rare diseases affect 1 in 10 Americans, yet many of these debilitating conditions impact a very small number of patients. The biopharmaceutical industry is delivering tremendous innovation, from disease-modifying medications to curative gene therapies, to address previously unmet medical needs. It is imperative that these innovations be accessible to those who deserve them.  This workshop brings together patients, families, patient advocacy groups, biopharmaceutical firms, providers, policymakers, and other NGOs to discuss how to achieve equitable access to care for rare diseases. Topics will include current barriers to care, ensuring earlier access, and drug pricing. Our goal is to empower patients and families who are affected by rare diseases.

      Categories: Health & Wellness | Outdoors & Recreation | Science

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